Families of Spinal Muscular Atrophy is Proud to be Implementing a New Support Program for Newly Diagnosed SMA Families

New Family Support Program Offered to Newly Diagnosed SMA Families.

Everyone at Families of SMA is extremely proud to be implementing our latest program for newly diagnosed SMA families. We have had several conversations regarding better ways to support families and those that are newly diagnosed.  Thanks to Hillary & Keith Schmid, the FSMA Greater Florida Chapter and Audra & Andy Butler, we are excited to announce that Families of SMA has created a binder of information with specific resources for each state. These binders contain important information about SMA, as well as provide families with a list of available resources within their state.  The binders can also act as an organized place for families to keep important medical information concerning their child.

Starting in December, we have been providing all newly diagnosed SMA families with this resource as soon as they contact FSMA.

Our goal is to connect newly diagnosed families with local chapters and other SMA families in their area as soon as they contact the Families of SMA National Office, as well to provide them with important resources available in their state.

We would like to thank all of the Families of SMA Chapters and SMA families who have provided us with the important information included in this binder.

If you are aware of any resources available in your community or state, and would like to share it with other SMA families, please e-mail info@fsma.org.

For more information on Families of SMA Support Programs, please click here.